Welcome to my blog. I have had ALS for 10 years now.


Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Friday, October 29, 2010

Thursday, October 28, 2010

Autumn after the rain



My friend Anne and I went for a walk yesterday and took advantage of the sunny day to photograph some Fall images.
We had a few days of wind and heavy rain and many of the trees were stripped bare of their colors. The first photo reminds me of myself and all the others I know, who despite terminal illness, keep hanging on.
It was a fun outing and I hope to experience more sunshine soon. However, the first snow is on the mountains and the air often feels like winter already.







Monday, October 25, 2010

Friends

Saturday, October 23, 2010

Home Again


I'm home and snuggled down. Everything went well with no complications.
The staff were caring and my roommate(MS) was a wonderful woman with humor and courage. I learn so much from others on a similar journey.
I will now take water through the tube as I'm not a good H2O drinker. All other food will be by mouth, as usual, until I begin coughing/choking frequently. The greatest fear is that I will get aspiration pneumonia so I must be cautious when eating and drinking.
I'm happy to have it done--no pain--and enjoyed meeting so many dedicated professionals and fellow courageous patients.
The entire experience was softened by the companionship of my Care Aide and all of you praying, hoping, visiting and sending cards, emails and telephone good wishes. Thank you.

Saturday, October 16, 2010

Seasons

The loss of summer moments with orange sunsets, hot days at the beach and the Rufus Hummingbird will be replaced with the beauty of pink winter sunrises reflecting on the water, the first snowfall and Chickadees hanging upside down to dislodge a berry.

Wednesday, October 13, 2010

I'm getting a PEG tube

On Tuesday, I'm getting a feeding tube put in at VGH.
My FVC(breathing) has dropped to 43%. It's best to get it before my percentage drops too low. I won't need to receive food through it yet but when the time comes, it will be there. I'll be in GF Strong for 3 days.
I'll update you on this adventure when I'm home and comfy.
Perhaps I'll have a story or two to tell.

Saturday, October 9, 2010

Love

Happy Thanksgiving Everyone!

Wednesday, October 6, 2010

Creative writing