Welcome to my blog. I have had ALS for 10 years now.


Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Thursday, April 28, 2011

Our Last Summer

http://www.youtube.com/watch?v=Z6YqC3D0GMo&feature=related
I remember it well.


I would rather sit on a pumpkin and have it all to myself, than be crowded on a velvet cushion. ~Henry David Thoreau

Tuesday, April 26, 2011

Thursday, April 21, 2011

Wednesday, April 13, 2011

Saturday, April 9, 2011

Update

I'm fine--just been busy.
I got new real lamb's wool elbow protectors to stop the abrasions on my arms and had geometric gel padding put in my power chair back to alleviate a spinal pressure point.
I'm trying a new medication to minimize the shaking so I can raise a fork or spoon to my mouth without flinging the food far afield. I hope it helps.
PROP brought me a full face mask for my BiPap that I can wear glasses with. This enables me to fall asleep watching T.V. It is a new model, but seems to work well.

Thank you for all the birthday wishes, cards, cakes, and gifts for my 65th. I was spoiled and loved every minute.

Monday, April 4, 2011

ALS Walk Richmond/Vancouver








I’m participating in the WALK for ALS and I’d like to ask for your support.

ALS is a fatal neuromuscular disease with no known cure, cause or effective treatment. The WALK for ALS supports provincial ALS societies and their programs to help people with ALS and their families, and the ALS Society of Canada’s investment in breakthrough research…help and hope!

It is my hope that you will consider sponsoring me by making a secure online donation using your credit card. Click on the link below to donate now...

http://my.e2rm.com/personalPage.aspx?SID=2935100&Lang=en-CA

Thank you for your support!
Karyn

P.S. Here are some additional ALS facts:
* Two to three Canadians die of ALS each day
* Approximately 3,000 Canadians currently live with ALS
* In at least 90% of cases, ALS strikes individuals with no family history of the disease
* Between 5-10% have a familial form of ALS, devastating families for generations
* ALS can strike anyone, regardless of age, sex or ethnic origin
* While the usual age of onset is between 55 and 65, many younger people, often parents, are afflicted
* Nearly 90% of people with ALS died within 5 years of diagnosis. While some live longer, others die within a few short months
* ALS affects the whole family
* ALS is a costly disease - emotionally, physically, and financially.

For more information on how YOU can become a walker yourself, please visit www.walkforals.ca

Richmond-Vancouver Walk

Location: Garry Point Park, Steveston

Date: Saturday, May 28, 2011

Walk Registration: 9:00 AM

Kick Off: 10:00 AM

Estimated End: 1:00 PM

Contact:
Vandhana Misri
(604) 880-0561
richmondvancouverwalk@alsbc.ca