Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Wednesday, October 13, 2010

I'm getting a PEG tube

On Tuesday, I'm getting a feeding tube put in at VGH.
My FVC(breathing) has dropped to 43%. It's best to get it before my percentage drops too low. I won't need to receive food through it yet but when the time comes, it will be there. I'll be in GF Strong for 3 days.
I'll update you on this adventure when I'm home and comfy.
Perhaps I'll have a story or two to tell.

1 comment:

Alice said...

praying for you, karyn, that all goes well! sorry you are having to endure this. blessings to you! thinking of you down here in florida :)