Welcome to my blog. I have had ALS for 10 years now.


Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Monday, March 24, 2014

I am hanging in there....

Monday, March 10, 2014

ALS-linked gene causes disease by changing genetic material's shape

3-D changes in DNA may lead to a genetic form of Lou Gehrig's disease
This image shows nucleolin (green) scattered throughout the nucleus (blue) in a motor neuron obtained from induced pluripotent stem cells generated from the skin biopsy of an amyotrophic lateral sclerosis patient. Credit: Jiou Wang, Ph.D., Johns Hopkins University.
Johns Hopkins researchers say they have found one way that a recently discovered genetic mutation might cause two nasty nervous system diseases. While the affected gene may build up toxic RNA and not make enough protein, the researchers report, the root of the problem seems to be snarls of defective genetic material created at the mutation site.

Monday, March 3, 2014


This is our writing group celebrating our 8th anniversary. It is amazing that we have stayed together 8 years. We really enjoy each others company and discussions.