I visited with Dr. Jeremy Road, my respirologist, Wednesday. My FVC had dropped over 10%. This is worrisome to me as it falls in the "caution" area.
FVC - forced expiratory vital capacity
The volume change of the lung between a full inspiration to total lung capacity and a maximal expiration to residual volume. The measurement is performed during forceful exhalation; the preceding maximal inhalation need not be performed forcefully . The volume assessed is the forced expiratory vital capacity (FEVC), commonly called forced vital capacity (FVC).
When I decrease to 60% I will be put on a wait list for a PEG(feeding tube). Although I may not need it right away, I will eventually, and they don't like to do the procedure when your FVC is below 50%.
I started in 2007 at 110%, then 96%, 85%, and now 73%. I seem to drop 10% every 6 mos. Although the doctor isn't worried, of course I am. I was originally hoping I'd be one of those lucky ALS patients who had strong FVC for years. One has to dream of the positive.
It's rather ironic that I developed ALS as I hate change. With ALS, you just get used to one change and another rears it's annoying head. I'm learning to adapt quickly--but not without frustration and tears. I've had some practise adjusting to change--regarding my clothing size. LOL.
Oh well, I have today, and tomorrow and ?? Living in the moment and enjoying every day becomes more poignant.
Hug your loved ones, phone that old friend, because "you just never know."
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