Welcome to my blog. I have had ALS for 10 years now.


Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Monday, July 6, 2009

With sadness we lose an author and ALS fighter



Losing My Voice! Living with Motor Neurone Disease (ALS)
...is an inspiring and emotionally moving story of courage and determination.

One year after moving from Auckland, New Zealand to Sydney, Australia to start a new career Barbara Williams is diagnosed with motor neurone disease MND, an incurable, degenerative, terminal condition also known as amyotrophic lateral sclerosis ALS. Once diagnosed with motor neurone disease, there is currently no hope of a cure. The best one can hope for is to slow the progression of the disease.

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