Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Saturday, July 18, 2009

Laryngeal dysfunction in Amyotrophic Lateral Sclerosis

I'm having more and more trouble with my voice projection and swallowing. As the muscles weaken I lose voice function and tend to choke on such things as lettuce and cereal. Eventually I will have no speech that you can understand and I will have to take nourishment through a feeding tube. It isn't the end of the world but another hurdle to deal with.
It feels like I have a mouthful of cotton when talking and choking is scary as you can aspirate, get pneumonia and need to be vented.
Like the picture, accepting something different with a positive attitude is the trick to moving on with grace.

1 comment:

Alice said...

i am learning so much from your posts. praying for you everyday. i can not even begin to imagine what you are dealing with everyday. just know that my heart is touched by you and i am blessed to be your blog friend :O).