Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Wednesday, July 22, 2009

ALS check-up

I'm feeling a little tired after my check-up, so I thought I'd just relax in my favorite spot.

The physiotherapist gave me some exercises for my hemi hip replacement and my sore lower back--which you all know I love to do! LOL. I also learned some techniques to transfer.

The social worker at the clinic is helping to get me some assistance with care costs. Statistics say I have about 2 years but some live 6+ years with a vent and  without some assistance I could be broke long before I die. If you're waiting for an inheritance--save your energy--I'll probably leave debt instead. This is all tongue in cheek as I have black humor. It's a family trait.

The OT is helping me with research on environmental controls on my "soon to be ordered" power chair. I hope to have the chair wired for a computer plug in and then I can use the joy stick for a mouse. It will be a BIG help as I lose more movement and spend more time in the power chair.

The doctor wasn't as concerned about my choking as I was. We will wait for my respiratory results in late August to determine if there is any need to consider a feeding tube. If my breathing score drops below 60% the PEG would be on my medical agenda. It appears to be premature at this time. Yahoo! My left leg swelling(oedema), is not alarming to the doctor. My carers massage it daily and the circulation improves so we will continue with this plus elevation.  

All in all they are pleased with my hip healing and my average to slow ALS progression.

I got a free ride from ALS transport to and from the clinic. A very nice benefit. My friend Lyn met me there and took excellent notes. I have great friends.

Today I was out and about with my care worker. It was a beautiful day and we celebrated her birthday.

That's all for now. 

1 comment:

Alice said...

i'm glad you were able to get out and celebrate your friend's birthday - that's great :O). have a great weekend!