Welcome to my blog. I have had ALS for 10 years now.


Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Tuesday, June 16, 2009

Another day closer to home


I'm working through the organization of going home with careworkers full time. VERY expensive.
Everyday brings new progress and some ALS weakness to challenge me.
Right now I'm in the UBC Science Centre enjoying a real cup of coffee and the computer. I have to leave soon to practise walking with my walker while the the physio hangs on to the back of my britches. 
I'm loving being on campus with the young people even if my home is  hospital. This is a gorgeous campus to scoot around in a power chair. The local coffee shops are getting to know me. There is something positive in this painful experience.
Love to everyone,
Karyn

1 comment:

Stephan Scharnberg said...

You're amazing--always able to separate the wheat from the chaff (sorry for the cliche)--parse the positive from the difficult situations you are challenged with. I guess we'll see you soon again.