I'm getting rather temperamental these days--not part of my usual character. Why? Well, I cannot blow my nose(no diaphragm strength). I cannot lift my arms high enough to scratch my head(shoulder muscles gone). My hands are so weak that I can no longer hold most things or turn pages. I need a bionic arm. Most people cannot understand my ALS accent, so I do not talk much. A nice change for my friends! When I'm tired, my Care Aides have to brush my teeth. I supervise. At night I bite my cheeks because my face muscles are weak and my mouth is so dry. I have also noticed my smile is different. It will eventually disappear. What a shame, it was so beautiful. LOL. Now I know I have to overlook all the many losses and concentrate on the positives--and there are many, but occasionally I have to rant. I feel better now. Thanks for listening.
1 comment:
you can vent to me any time you want - you've earned it! i just wish there was a way to help. :(
Post a Comment