Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Wednesday, April 11, 2012


I'm getting rather temperamental these days--not part of my usual character. Why? Well, I cannot blow my nose(no diaphragm strength). I cannot lift my arms high enough to scratch my head(shoulder muscles gone). My hands are so weak that I can no longer hold most things or turn pages. I need a bionic arm. Most people cannot understand my ALS accent, so I do not talk much. A nice change for my friends! When I'm tired, my Care Aides have to brush my teeth. I supervise. At night I bite my cheeks because my face muscles are weak and my mouth is so dry. I have also noticed my smile is different. It will eventually disappear. What a shame, it was so beautiful. LOL.
Now I know I have to overlook all the many losses and concentrate on the positives--and there are many, but occasionally I have to rant. I feel better now. Thanks for listening.

1 comment:

Alice said...

you can vent to me any time you want - you've earned it! i just wish there was a way to help. :(