Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Monday, June 20, 2011

To die or not to die

Whether you live alone or have a family, finances weigh heavily on the decision to prolong your life with ALS.

When you need paid care, a special vehicle, etc., etc.,---unless you are very wealthy, have excellent insurance, or a retired partner to care for you, the idea of a tracheostomy becomes an impossible dream. 24hr. care is mega expensive and the governments of Canada and U.S. show no mercy.

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