Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Friday, March 18, 2011

March 21st I'll celebrate 65

On Monday I'll reach a milestone that I never expected to reach. Many people get depressed about becoming a senior and receiving their gold card. I welcome it as a bonus.
In 2004 I had my first symptom of ALS when I jumped from a raised garden bed and my legs collapsed. For 3 years my symptoms increased--weak legs, out of breath, staggering at night(and no I wasn't drinking), terrible balance, falling, drop foot, cramping, pain after walking, etc.. Doctors had no idea what was wrong. I was incorrectly diagnosed with peripheral neuropathy in 2006. Finally in 2007 I insisted on seeing a new neurologist. The news followed after testing--I had ALS.
Now in 2011 I'm at the average for length of time for survival. However, I know others who died after 1 year and some 10 yrs.
I'll aim for my 70th birthday and see how I do.

"No matter what age you are, or what your circumstances might be, you are special, and you still have something unique to offer. Your life, because of who you are, has meaning."

- Barbara de Angelis


Alice said...

i wondered what your history was. so thanks for sharing that. AND HaPpY BiRtHdAy! on monday! (that's my husband's birthday, too). i hope you have a wonderful day! i think i'll eat a piece of cake in your honor :D

Stephan Alexander Scharnberg said...

Happy Birthday!!!