My World

Many have asked how I'm doing. Those who see me all the time have a pretty good idea, but those who haven't seen me as much, have no idea. So, I decided to sum things up on my blog.

I'm losing my voice but can still talk with a weak enunciation. My vocal cords are somewhat paralysed and since they stretch across my larynx I cannot make all sounds. Also my tongue is weaker so I talk slowly. The tone has deepened -- I sound like George Burns(if you're old enough to remember him). Although I'm 24/7 in a wheel chair I can move my right leg--not so much my left. I can't move them in bed and I find it very frustrating. I use an over head lift to get in and out of bed and a portable lift to get me into my lounging chair. My Care Aides feed me some of my meals as it's very hard to hold a fork or lift my arms. I drink coffee or wine through a straw--still tasty. I have a feeding tube for water, and a V-Pap machine to use when I'm short of breath. My brain is fine.

Often I go out(with friends or Care Aide) to get groceries, shop, have a sandwich, get some fresh air, etc. I can still hold my head up but the neck muscles are weakening. I can deal with most everything because I was smart enough and fortunate enough to invest for my retirement, therefore I can afford "live in" care.

The greatest frustration is losing the use of my hands and arms. Just try existing with your hands behind your back for 2 hours and you'll understand.

My spirits are usually very good and I laugh a lot at life and myself. It's a wonderful way to cope.

Well, I think that's enough to give you some idea of where I'm at.

Life is still good. I tire easily but it doesn't stop me from throwing a party once in awhile.

Thanks to all of you who keep me smiling.