Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Thursday, March 4, 2010

Breathing test

I went for my breathing test and my FVC(forced volume vital capacity) has dropped to 61%. I started out at 100% 2.5 years ago but have been dropping significantly this past year.
I'm hoping to stabilize for awhile but one never knows. When I have difficulty they'll provide me with a BiPAP(bi-level positive airway pressure) to help me get more air both in and out. It's normal progression for ALS and I must continue trying my best to deal with every new hurdle. Many of my ALS pen pals are functioning very well with BiPAP--and so will I when the time comes.

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