Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Wednesday, November 18, 2009

"It Feels Like Home"

It has been awhile since I sat down at the computer and written anything of substance. I suspect my busy schedule(LOL) and my deteriorating body have been in the way. Since I started taking hydromorphone last week, for my painful leg, I've been sleepy and non-talkative. However, I stopped the drug yesterday and my chatty, but slower self has re-emerged. Your peace and quiet no longer exists!
As many of you know, I love the rain, so when you feel down because of the weather, just visualize how happy and snug I am. It probably won't cheer you up but at least you can feel these days are joyful for one of your weirdo friends.
I ventured out today to the bank and to Chapters. I stopped with Tess(my carer) to sip a warm drink at Starbucks coffee shop. Something about the Christmas decorations, the brisk wind and new snow on the mountains made me think of the song from "My Sister's Keeper," "It Feels Like Home." The book/movie is a sad story, but when I snuggle down in my Easy Chair with my comforter wrapped around me and the fireplace on, I'm in touch with the love I feel from both good and not so good life experiences.
My time with a terminal illness hasn't changed the old me, but my appreciation for the basic needs in life has magnified. On this cold, rainy, windy night I give thanks for shelter, heat, and food--and you.

1 comment:

Alice said...

karyn, kali and i have been out of town the past two weeks and mostly out of touch. i hope you are feeling better and doing better. we had a good thanksgiving here today. way too much food - lol! i hope you have a great week ahead.