Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Saturday, November 7, 2009

ALS Facts


ALS is also called . . .
Amyotrophic Lateral Sclerosis
Sclérose latérale amyotrophique
Lou Gehrig's Disease
Maladie de Lou Gehrig
Motor Neuron Disease (MND)
Maladie de Charcot

ALS is a rapidly progressive fatal neuromuscular disease.
Amyotrophic Lateral Sclerosis
Nerve cells degenerate
Muscles are paralyzed
Generally the intellect & senses are unimpaired

ALS can strike anyone.
Male or female
Any ethnic origin
At any age
Some have been diagnosed as teens
Usual onset is in middle age

80% die of ALS within two to five years of diagnosis
Some will die within a few short months
Some people live longer

Some cases are hereditary.
Less than 10% are familial ALS
ALS is not contagious

Approximately 2,500-3,000 Canadians currently live with ALS.

Every day two or three Canadians die of ALS.

ALS is the most common cause of neurological death

ALS strikes the whole family.
90% of home care is shouldered by family caregivers
ALS is a costly disease - emotionally, physically and financially

ALS Society Unit provides quality care
Information and referrals
Support for the person with ALS and their family
Equipment programs

The ALS Society of Canada funds excellent and relevant research into the cause of ALS
Research is our best hope
Partner with us for a cure – Call 1-800-267-4257

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