Karyn's View: ALS is an expensive disease

Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

Friday, August 21, 2009

ALS is an expensive disease

$60,000.00 wheel chair van

$18,000.00 per mo. full time care by qualified care workers

$35,000.00 fully outfitted power chair

$3000.00 hospital bed

$6000.00 bath equipment and remodel

$2000.00 lift chair

The list goes on and on and on and on.

Thank heavens for ALS society, insurance and donations. Unfortunately the government doesn't help at all--they say, "Move to a Home." Well, I'm not ready, and I'm not going. I'll wait until I'm broke. The wait may not be long. LOL.