Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Friday, August 21, 2009

ALS is an expensive disease

$60,000.00 wheel chair van
$18,000.00 per mo. full time care by qualified care workers
$35,000.00 fully outfitted power chair
$3000.00 hospital bed
$6000.00 bath equipment and remodel
$2000.00 lift chair
The list goes on and on and on and on.
Thank heavens for ALS society, insurance and donations. Unfortunately the government doesn't help at all--they say, "Move to a Home." Well, I'm not ready, and I'm not going. I'll wait until I'm broke. The wait may not be long. LOL.

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