Just one toe,
then taking a foot it moves
up the body weakening muscles in its path
settling in a finger--just one.
Not done for the year the voice starts to diminish in its wake
and tremors are seen where calves atrophied last summer.
Now two toes--and two fingers--curled and useless
like upside-down coat hooks continually getting in the way.
A hand no longer able to hold a fork.
Then resting, as if teasing that maybe--just maybe--there will be a remission.
But not to be as throat muscles spasm and a swallow of water evokes a choke.
Wheelchair,
hospital bed,
feeding tube,
breathing device,
computer generated voice,
full time care.
The mind stays sharp. A blessing?
Perhaps.
K.R. March/09
From Go Pro
Monday, March 9, 2009
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1 comment:
did you write this? it's very good. and very touching. i have already had one friend with ALS and i watched many of these things happen with him. i find it very scary and difficult. praying for you karyn - that God keeps you safe and holds you real close! you are always such a bright spot in my day! seriously!
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