Welcome to my blog. I have had ALS for 10 years now.

Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Monday, March 9, 2009

Slow Paralysis

Just one toe,
then taking a foot it moves
up the body weakening muscles in its path
settling in a finger--just one.
Not done for the year the voice starts to diminish in its wake
and tremors are seen where calves atrophied last summer.
Now two toes--and two fingers--curled and useless
like upside-down coat hooks continually getting in the way.
A hand no longer able to hold a fork.
Then resting, as if teasing that maybe--just maybe--there will be a remission.
But not to be as throat muscles spasm and a swallow of water evokes a choke.
hospital bed,
feeding tube,
breathing device,
computer generated voice,
full time care.
The mind stays sharp. A blessing?

K.R. March/09

1 comment:

Alice said...

did you write this? it's very good. and very touching. i have already had one friend with ALS and i watched many of these things happen with him. i find it very scary and difficult. praying for you karyn - that God keeps you safe and holds you real close! you are always such a bright spot in my day! seriously!