Not much new to report after ALS Clinic visit. No one is sure why I'm wheezing so will have a chest x-ray. Breathing score is still good. Having most of my medication changed to hopefully reduce oedema and nerve pain and improve sleep.
I met the new social worker and had a discussion about end of life decisions, DNR, venting, PEG, etc. Learned some interesting stuff. I like to be prepared.
Beautiful day here in Vancouver--sunshine, calm waters and new snow on mountains. Having ALS is bad but life is still good.
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