Welcome to my blog. I have had ALS for 10 years now.


Since I started this blog in June 2008 I've had amazing feedback. Family, friends, people from all over North America, Australia, Scotland, England, and places I can't recall, have commented, encouraged and corresponded. I had no idea when Cynthia taught me how to set this up, how much I would love posting and how many people would read it. I want to say THANK YOU to everyone who has helped propel this therapeutic exercise into a daily routine. All of you, both friends and visitors, are now part of my blog family. Welcome.

From Go Pro

From Go Pro
View from my living room

Tuesday, October 14, 2008

Good Visit to ALS Clinic



I had a good visit to the ALS Clinic today. They're a great team and once again gave me helpful tips and information. My strength is less than in April but not progressing at a rapid pace. My OT at GF Strong had valuable ideas for my bathroom reno and the physiotherapist is setting me up with home visits. My shoulders are weak and freezing up so I have to get some stretching and ROM exercises. I'm fortunate that my speech therapist is a MAC person(like me) so all the computer devices I'll use in the future will be compatible with Apple products. I'm purchasing a new MacBook at the end of this month. It will be light for use on a power chair and easy for me to move with one hand. It's wonderful that I'm only 15 mins. from the Clinic and 10 mins. from my specialists at VGH. Oh--and the humorous part. I asked about going on a diet to lose 20 lbs, to make it easier for my caregivers in the future when moving me and I was told an emphatic "NO!" They do not like ALS patients to diet. It was sweet music to my chubby ears. Bring on the pasta!
Hope everyone had a good Thanksgiving.

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The Coming Depression!