Friday, December 4, 2009

A little chilly

It's cold outside but the sunshine is beautiful. I've been going out when I feel the cold won't bother my muscles. Unfortunately, my weakened muscles cramp in the cold or they start to spasm. As many of you know, I love snow, so I hope we get a little this winter.
I have my Charlie Brown tree up and a few decorations out. My T.V. is on "Traditional Christmas Music" and I have my finger nails painted green and red with white Christmas trees on them. I'm in the spirit.
I bought "UGG" boots(lined with lamb's wool) to keep my ALS cold feet warm. My toes are curling due to muscle atrophy and they look like paws!
My speech is slow-- I sound like I've been drinking. Some people probably think I sleep on a bench in the park. Ha!
Setbacks are just that--with new devices I manage well. My iPhone has arrived and I will download a speech program. Also my new power chair was delivered. They set it up today so I can use the driving joystick as a mouse for my computer. They will change the foot plate and make a few other adjustments before it's ready to roll. The elevation feature is great. I can reach cupboards and raise my chair to talk with people at eye level. I'm very fortunate to live in such a high tech time. I can imagine the frustration, living with ALS 50 years ago.


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